By including patients鈥 hobbies, favorites pets, and other personal information in medical records, clinicians are better able to interact with them and see the whole person.
Credit: NYU Langone
If you could share something about yourself that captures who you are, what would it be? This is an exercise that NYU Langone Health now offers to patients, and it鈥檚 already enhancing care.
The spark for this initiative, which officially launched this year, began in 2013, when NYU Langone was preparing to become one of the first major health systems to go live with Epic, the electronic health record system. In the shadow of rebuilding from Hurricane Sandy, Paul A. Testa, MD, chief health informatics officer, bumped into Katherine Hochman, MD, director of the .
鈥淎s we鈥檙e going live with Epic, how do we make sure we include the patient voice?鈥 asked Dr. Testa.
Dr. Hochman鈥檚 recommendation was personal: 鈥淚f I ever get admitted, I want everybody to know I鈥檓 a mom, a German shepherd fanatic, a bibliophile, and a doctor.鈥
Evidence shows that and patient engagement, and can lead to better health for patients.
鈥淲e deliver exceptional care in shorter and shorter lengths of stay, which means there鈥檚 less time to connect with patients in meaningful ways. That鈥檚 the real challenge,鈥 said Dr. Hochman.
As a hospitalist who meets up to 18 new patients every day, Dr. Hochman practices a 鈥渟low down to speed up鈥 philosophy. She takes a moment at the beginning of each encounter to try to get to know each patient as a person outside the hospital.
鈥淎sking simple questions about their lives before you get to the 鈥榤eat鈥 of the interview really helps melt the anxiety, frustration, and sometimes anger that comes from being in a hospital,鈥 Dr. Hochman said. 鈥淚 recognize that I have just a couple seconds to connect with a patient. It鈥檚 a critical moment in a hospital stay that must be recognized as such. We鈥檙e complete strangers, and suddenly you have to trust me. I needed that moment of connection. And when we do connect, you鈥檙e no longer the heart failure in bed five. You鈥檙e the botanist who rehabilitates orchids.鈥
While Dr. Hochman captured this personal connection in her notes, this individual effort was not scalable. A sustainable solution required the expertise of the clinical informatics team.
Leveraging already integrated technology, NYU Langone鈥檚 clinical informatics team, including Kerry O鈥橞rien, MPH, RN, senior director of clinical systems and nursing informatics, along with the Medical Center Information Technology鈥檚 Department of Health Informatics, crafted an 狼窝导航 Me prompt in Epic:
- 鈥淲e want to get to know you as a person, not just a patient.鈥
 - 鈥淲hat you should know about me is:鈥
 
O鈥橞rien鈥檚 team saw that responses fell into five main themes: hobbies and interests, family, personal and cultural identity, career, and beloved pets. Responses were often simple statements, such as 鈥淚 love plants.鈥 鈥淢y wife is pregnant with twins.鈥 鈥淚鈥檓 a first-generation Haitian American.鈥 鈥淚 listen to salsa music all the time.鈥
The number of patients choosing to share reflects a need to be known and understood when you are in a vulnerable moment.
鈥淲e鈥檙e bringing this data into the electronic health record, which is then visible to every clinician who opens the chart,鈥 said Jared Silberlust, MD, a clinical informatics fellow who is publishing research on the initiative. 鈥淣ow, everybody who cares for you, whether they just met you today or whether they鈥檒l know you forever, can have that information and connect with you.鈥
These responses are sometimes the discoveries that allow the best care to happen. Dr. Silberlust describes a patient who was unwilling to start dialysis treatment for end-stage kidney disease. When his doctor learned through 狼窝导航 Me that the patient had been a New York City bus driver for 20 years, he was able to connect with the patient about his service to the city, and suddenly the patient鈥檚 entire demeanor shifted. He became open to discussing treatment and ultimately agreed to the dialysis that would keep him alive.
Dr. Silberlust also highlighted a patient dying of pancreatic cancer whose son was about to enter medical school. The White Coat Ceremony, which formally marks matriculation, wasn鈥檛 scheduled until August, but it was June and time was running out. The medical team arranged for an early ceremony to take place in the patient鈥檚 home, allowing him to witness his son鈥檚 milestone before passing just days later.
Even simpler connections can create ripple effects. A patient who mentioned loving crossword puzzles found her entire care team contributing to puzzles during their visits, making what was an isolating medical experience an opportunity for connection.
The initiative has had a secondary effect of rekindling the sense of purpose that drew healthcare professionals to medicine in the first place.
鈥淓very time I read it, I get emotional,鈥 Dr. Testa said. 鈥淭here is no way to look at these and not get emotional, and you see your patients in uniquely personal ways.鈥
For Dr. Hochman, the impact is both personal and professional. 鈥淚t made my joy of practice swell. I am鈥攎ore than ever鈥攔ooting for this botanist in bed five because I want her to get back to her orchids.鈥
Patients who don鈥檛 feel seen as full human beings may be less likely to follow treatment recommendations, less forthcoming about symptoms, and less engaged in their own care. 鈥淢issed opportunities to connect with your patients are missed opportunities to deliver optimal care,鈥 said Dr. Testa. 鈥淭his is the very definition of patient-centered care.鈥
The response from both patients and clinicians was immediate. The initiative has generated more than 1,000 entries, with some units achieving 80 percent participation rates among patients. Nurses have embraced the program, currently accounting for 90 percent of entries being collected and entered and are using them to forge stronger bonds in fast-paced settings.
鈥淭he enthusiasm of the operational staff has been great,鈥 said O鈥橞rien. 鈥淚 am hearing people are really excited about how they used the information to connect with patients. When people express themselves, it is a clue into what they value, and incorporating that insight is what we want for all patients.鈥
Since its pilot launch across 12 units, 狼窝导航 Me has expanded to 35 units total, with demand continuing to grow throughout NYU Langone. Once the program is deployed across all inpatient units, NYU Langone will extend it to its ambulatory encounters in 2026.
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Arielle Sklar
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Arielle.Sklar@NYULangone.org